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Long-term ventilation in children

Paediatrics and Child Health - Thu, 03/07/2019 - 00:00
Long-term ventilation (LTV) is now an accepted treatment for children with a wide variety of conditions. Respiratory support can be delivered via a mask or a tracheostomy and can range from CPAP to treat obstructive sleep apnoea, to 24 hour a day sophisticated invasive ventilation. Patient numbers are increasing out of proportion to population growth, suggesting that more children are being supported due to changes in societal expectation, improved survival in PICU, and the availability of more advanced ventilators.
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Setting Kids Up for Success (SKUFS): Outcomes of an Innovation Project for Promoting Healthy Lifestyles in a Pediatric Patient-Centered Medical Home

Journal of Pediatric Health Care - Tue, 03/05/2019 - 00:00
The greatest increase in childhood obesity prevalence occurs from preschool to school-age (SA). Evidence supports a family-centered approach to promote healthy lifestyle behaviors and weight management among SA children. The purpose of this study was to establish a healthy weight management support group in a pediatric patient-centered medical home.
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Frequency, Severity, and Distress Associated With Physical and Psychosocial Symptoms at Home in Children and Adolescents With Cancer

Journal of Pediatric Health Care - Tue, 03/05/2019 - 00:00
Malignancy- and cancer-related treatments lead to multiple symptoms. Although treatments focus on cure, few research studies have examined the symptoms that accompany these aggressive and complicated treatments. The purpose of the study was to evaluate the symptoms experienced by children at home. Children (n = 25) and adolescents (n = 33) diagnosed with cancer completed the Memorial Symptoms Assessment Scale during the 5 days at home after discharge from the hospital. The most frequent physical symptoms were fatigue (52.1%), nausea (50.7%), lack of appetite (43.7%), and pain (42.3%).
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Fifteen-minute consultation: A guide to managing a child with a new finding of neutropenia

Rebecca M James
Mar 4, 2019; 0:archdischild-2019-316829v1-edpract-2019-316829
BEST PRACTICE AND FIFTEEN-MINUTE CONSULTATIONS
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Fifteen-minute consultation: Recognising primary immune deficiencies in children

Per Wekell
Mar 2, 2019; 0:archdischild-2018-315484v2-edpract-2018-315484
BEST PRACTICE AND FIFTEEN-MINUTE CONSULTATIONS
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Editorial Board

Paediatrics and Child Health - Fri, 03/01/2019 - 00:00
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Stress, Depression, and Quality of Life Among Caregivers of Children With Osteogenesis Imperfecta

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
The purpose of this study was to evaluate stress, depressive symptoms, and quality of life (QOL) among caregivers of children with osteogenesis imperfecta (OI) and to determine if associations exist with patient disease-related characteristics.
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The young athlete with dyspnoea

Paediatrics and Child Health - Fri, 03/01/2019 - 00:00
Problematic dyspnoea in young athletes is most commonly due to either exercise induced asthma, exercise induced laryngeal obstruction or a breathing pattern disorder. Pathologies that affect the physiological processes involved in the transport of oxygen from ambient air through to the working muscles can also cause dyspnoea. Other factors including psychology, environmental and sport specific factors can contribute. This review highlights the value of a systematic approach to a young person with difficulty in breathing as a result of exercise.
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The child with the large head

Paediatrics and Child Health - Fri, 03/01/2019 - 00:00
Macrocephaly is usually a benign condition that does not require intervention. Presenting in infancy, it is commonly due to familial macrocephaly (FM). However, there are some underlying pathologies that clinicians need to be aware of and exclude prior to reassuring parents. This review aims to give a practical approach to assessing the child with the large head and identify features that warrant further investigations.
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Perspectives From Nurses and Physicians on Training Needs and Comfort Working With Transgender and Gender-Diverse Youth

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
Nurses and physicians receive minimal training about providing competent care to transgender and gender-diverse (TGD) patients, and training specific to TGD youth is particularly lacking. This qualitative study examined health care providers’ experiences and attitudes about working with TGD youth to identify specific training needs.
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Society Page

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
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Caring for Gender-Diverse Children and Youth

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
Youth who identify themselves as transgender and gender-diverse (TGD) are traditionally underserved by our current health care system and, as a result, encounter multiple associated risks as well as mental health issues. While society at large has been grappling with issues such as proper pronouns and restroom guidelines, the health care system has also been lacking in promoting gender-affirming clinical environments. Many providers acknowledge a lack of preparation and experience to adequately care for children and youth who identify as TGD, and have called for more formal training, standardized treatment approaches, and the funding of research to further examine approaches to care and health outcomes.
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NAPNAP Position Statement on Health Risks and Needs of Lesbian, Gay, Bisexual, Transgender, and Questioning Youth

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
The overall goal in caring for all youth, including those who are lesbian, gay, bisexual, gender nonconforming, transgender, or questioning (LGBTQ), is to promote normal adolescent development, social and emotional well-being, physical health, and reduce any associated physical and mental health risks (Adelson, Stroeh, & Ng, 2016; American Academy of Pediatrics [AAP], 2013; AAP, 2018). While many LGBTQ youth navigate adolescence as well as their heterosexual peers, others are exposed to social stigma, discrimination, prejudice, and victimization (both mental and physical; Earnshaw et al., 2017).
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It's Time to Lead, Before Someone Else Does

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
As you read this, we will be getting ready to meet in New Orleans for our annual meeting. One of my absolute favorite things about being a NAPNAP member is the opportunity to attend our annual conference. I always walk away with new knowledge that helps me develop clinically and professionally, and the networking opportunities are the best I have ever found. Through the years, I have met and made friends with people from all over the country, and most meetings feel like a family reunion as we all reconnect and share updates about the important things in our lives.
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NAPNAP Position Statement on Age Parameters for Pediatric Nurse Practitioner Practice

Journal of Pediatric Health Care - Fri, 03/01/2019 - 00:00
Creation of exclusive age limits for the provision of health care in pediatric, adolescent, and young adult patients may unnecessarily create barriers and limit access to care continuity for this population (American Nurses Association, National Association of Pediatric Nurse Practitioners [NAPNAP], & Society of Pediatric Nurses, 2015; Hardin, Hacknell, & Committee on Practice and Ambulatory Medicine, 2017; Licensure, Accreditation, Certification and Education [LACE] APRN Network, 2012). Pediatric nurse practitioners (PNPs) have the education, certification, and licensure to provide comprehensive care to all children from birth through young adulthood.
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